Tuesday, 28 October 2025

Stop the parental-blame culture: A call for kindness to parents this World Kindness Day

In the run-up to World Kindness Day (13 November), and in my role as a speech–language therapist working with children with SEND and their families, I want to draw attention to a deeply troubling phenomenon: the institutional and systemic culture of parental blame. The research of Luke Clements (Cerebra Professor of Law and Social Justice, University of Leeds) and colleagues highlights that many local authorities act as if parents are the problem, rather than the system failing the family. ([Cerebra][1]) In this blog post I’ll explain what the research shows, why this matters for families — especially those I see in my clinic — and why government and local authorities must adopt kinder, more supportive practices. What the research shows Clements and Aiello’s study — Institutionalising Parent-Carer Blame (2021) — analysed 143 local authority children’s services assessment protocols and surveyed 92 parent-carer led groups. ([lukeclements.co.uk][2]) Their findings are stark: Many local authority protocols do not distinguish between families seeking support for a disabled child and families where there is suspicion of neglect or abuse. In effect, all are subjected to a “child protection” lens, regardless of need. ([lukeclements.co.uk][3]) * For example: 80 % of the protocols required assessors to confirm if the child’s bedroom has been seen, regardless of any evidence of neglect. 87 % required the child to be interviewed alone, regardless of any evidence of abuse. ([lukeclements.co.uk][2]) * Surveyed parent-carer groups reported that 86 % considered the assessment process “extremely unsatisfactory and intrusive”. Many parents described it as “humiliating”, “bullying”, “devastating” or akin to “the police turning up at your door with a warrant”. ([Special Needs Jungle][4]) * The research concludes that national and local social care policies create a default assumption of parental failings when disabled children and their families engage with services. They term this “institutionalised parent-carer blame”. ([Cerebra][1]) In short: parents seeking support for their child’s additional needs frequently feel treated as if they are doing something wrong. The system appears to assume fault, rather than starting from a place of support. Why this matters -- and what it looks like in the clinic As an SLT working with children who have communication needs, autism, selective mutism, demand-avoidance profiles and sensory differences, I see families who are exhausted, anxious, and worried about being judged. The research shines a light on structural practices that amplify these pressures. Here’s how it shows up: * A parent brings a child for support. The child is working hard but still struggling. The parent is doing their best. Yet the local authority’s default assessment sets the tone: “Why isn’t this working? What are you doing wrong?” * Families feel they must defend themselves, rather than feel heard. The process becomes adversarial, and energy is spent on survival rather than progress. * Parents may avoid seeking help in the first place for fear of being judged, labelled “ineffective” or having their parenting scrutinised. That delays intervention, which we know is time-sensitive for communication and language outcomes. * The psychological toll matters. When families feel blamed, their capacity to co-regulate, support and advocate is eroded. For children with complex needs (language, sensory, executive function), the family environment is key. A blaming stance undermines trust and collaboration. On World Kindness Day, the call is timely. Kindness in professional-system interactions isn’t a fringe “nice to have”; it is essential for effective partnership and for safeguarding the wellbeing of both children and their parents. What needs to change: A kinder, more effective system Drawing from Clements’ research and my own experience in therapy, here are key shifts needed from local authorities and government: 1. Shift from blame to support * Assessment protocols must clearly distinguish: disabled children needing support ≠ children in need of protection. Many protocols do *not*. ([lukeclements.co.uk][3]) * Guidance should emphasise *what the child and family need* rather than *what the parent did wrong*. 2. Ensure assessors have appropriate expertise * The research found that national guidance (e.g., Working Together 2018) does not require assessors of disabled children to have disability-specific expertise. ([essl.leeds.ac.uk][5]) * Local authorities must train assessors in disability, communication needs, sensory processing and neurodivergence, so families aren’t treated generically. 3. Revise local protocols to remove intrusive default practices * Practices like unannounced home visits, bedroom inspections, interviewing children without parent present (when no safeguarding concern) create trauma and distrust. ([Cerebra][6]) * Protocols should only authorise these steps when there is credible evidence of safeguarding concern, not as a default. 4. Embed parent-carer voice and partnership * Families often feel excluded or infantilised. The system must engage parents as partners, recognising their expertise about their child. * Parent-carer needs assessments (as required under Children and Families Act 2014, section 97) are being denied in too many cases. ([UK Parliament Committees][7]) 5. Embed kindness as system value * Kindness here means: respectful language, recognising stress and effort, acknowledging systemic barriers, offering clear pathways, timely support, and reducing fear of blame. * On World Kindness Day and every day, local authority communications, policies and frontline staff should reflect a stance of help not judgement. Why this matters for children’s outcomes When parents feel supported rather than blamed, children benefit: * Engagement in therapy and services is better. * Families are more likely to ask for help early. * Co-regulation and trust at home improve, enabling children’s progress in communication, interaction and emotional regulation. * Reduced stress in the family system means resources can go into *learning*, not *defending*. In other words: kindness is not soft; it is strategic. A call to action So, to local authorities, regional children’s services, government, and to all of us in allied professions (SLTs, social workers, educational psychologists, OT etc): * Acknowledge the problem: that parental blame is institutionalised. The evidence from Luke Clements and team is clear. ([Cerebra][8]) * Review your policies and practices today: Are they assuming parenting fault? Are they treating families of disabled children like they are under suspicion, rather than support? * Replace standard assessment-pathways with support pathways: one for families requesting routine support, another (distinct) for safeguarding/child-protection where concerns exist. * Engage with parents, ask them what they experience, involve them in redesigning assessment protocols. * Make kindness explicit: embed it in training, supervision, policy documents, front-line practice. In my clinic: What I’ll be doing As an SLT, I pledge to: * Use language in my reports and conversations that reflects a supportive partnership with parents: “How can we help together?” rather than “What’s wrong with how it’s being done?”. * Advocate for families when I see assessment pathways that feel punitive or intrusive. * Share with parents the research by Clements & Aiello so they feel validated and understood that the system may be working against them, not with them. * Encourage local authority teams and school-based colleagues to adopt kinder practices, and offer evidence of the impact of parenting-blame on therapeutic outcomes. Conclusion On 13 November, as we celebrate World Kindness Day, let’s extend kindness where it matters most: to the parents and carers of children with additional needs — the ones who often carry a heavy burden, who show up each day, who fight for their child’s communication, connection and learning. Kindness from the system means recognising that **parents are not the problem**. The problem is a system that treats families as if they are under suspicion rather than deserving of support. The research by Luke Clements and colleagues gives us the evidence; now it’s time for the policy-makers, local authorities and professionals to act. Let’s stop the parental blame. Let’s start genuine partnership, genuine support, and genuine kindness. References Clements, L. & Aiello, A. (2021). *Institutionalising parent-carer blame: The experiences of families with disabled children in their interactions with English local authority children’s services departments.* Cerebra Legal Entitlements & Problem-Solving (LEaP) Project, School of Law, University of Leeds. Clements, L. (2021, July 22). “Urgent change is needed to stop the institutional culture of parent-carer blaming.”Special Needs Junglw. [1]: https://cerebra.org.uk/wp-content/uploads/2021/07/Final-Parent-Blame-Report-20-July-21-03.pdf?utm_source=chatgpt.com "Institutionalising parent carer blame" [2]: https://www.lukeclements.co.uk/wp-content/uploads/2021/12/Institutionalising-Parent-Blame-webinar-PP-handout.pdf?utm_source=chatgpt.com "Institutionalising parent blame" [3]: https://www.lukeclements.co.uk/institutionalising-parent-carer-blame/?utm_source=chatgpt.com "Institutionalising Parent-carer Blame" [4]: https://www.specialneedsjungle.com/urgent-change-needed-stop-institutional-parent-carer-blaming/?utm_source=chatgpt.com "Urgent change is needed to stop the institutional culture of ..." [5]: https://essl.leeds.ac.uk/download/downloads/id/923/challenging-parent-carer-blame-interim-research-report-1-disability-and-human-rights-training-and-guidance-for-disabled-childrens-assessors-2022.pdf?utm_source=chatgpt.com "Challenging Parent Carer Blame: Interim implementation ..." [6]: https://cerebra.org.uk/wp-content/uploads/2021/07/Final-Parent-Blame-Report-20-July-21-02.pdf?utm_source=chatgpt.com "Institutionalising parent carer blame" [7]: https://committees.parliament.uk/writtenevidence/107835/pdf/?utm_source=chatgpt.com "Written evidence from Luke Clements, Cerebra Professor ..." [8]: https://cerebra.org.uk/research/institutionalising-parent-carer-blame/?utm_source=chatgpt.com "Institutionalising Parent-carer Blame"

Friday, 24 October 2025

When School Hurts: Why Some Children Can’t Attend — and Why Punishing Families Makes It Worse

There’s a growing narrative that children missing school are simply refusing to attend — and their parents need to “get a grip.” But that story ignores thousands of children whose non-attendance is rooted in trauma, anxiety, sensory overload, or unmet SEND needs. These children are not skipping school. They are avoiding pain. When a Child’s Body Says “No More” For many neurodivergent children — especially autistic students, those with sensory processing differences, PDA profiles, or mental health difficulties — school can be overwhelming: • Noise that feels like physical pain • Rigid behaviour systems that punish distress • Social pressures they can’t navigate • Environments that feel unsafe or unpredictable They want to learn. They want to succeed. But their nervous system is in survival mode. Calling this “school refusal” is misleading. Often, it is school-induced trauma. The Harm of a One-Size-Fits-All Attendance Push Current political messaging treats all non-attendance as the same kind of problem. The result? ✅ Children in crisis are fined, labelled, and pushed harder ✅ Parents who are advocating nonstop for support are blamed ❌ The root issues — lack of appropriate provision — remain untouched Children become statistics instead of individuals. What These Children Need Instead ✔ Trauma-informed, flexible education ✔ Sensory-safe environments ✔ Recognition of anxiety and neurodivergence ✔ Collaboration with parents (not punishment) ✔ A placement that fits the child — not the other way around Attendance improves when school is a place a child can actually cope. A Better Narrative We must stop treating these families as the problem. They are doing everything they can to protect their child. The real issue isn’t that these children won’t go to school. It’s that the school system hasn’t yet found a way to welcome them. Let’s fix the system — not the children.

Friday, 3 October 2025

Natioanl Internet Day: The Value of Online Friendships for Autistic Children

For many children, friendships are built on the playground, in classrooms, or through after-school clubs. But for autistic children, these environments can be overwhelming. Social interactions face-to-face often involve **fast-changing conversations, background noise, unwritten social rules, and non-verbal cues that are hard to interpret in the moment. This can make forming and maintaining friendships exhausting. That’s why online friendships can be so valuable. The internet offers autistic children a space where social demands are reduced, and connections can be made in ways that feel manageable and meaningful. Why online friendships can be easier 1. Time to process Online communication gives children time to think, process what’s been said, and decide how to respond. There’s no pressure to reply instantly, unlike in face-to-face conversations. 2. Clarity in communication Written messages remove many of the hidden social cues that can be confusing. Tone of voice, facial expressions, and body language are replaced with clear words, emojis, or shared images. 3. Shared interests first Many online communities are built around hobbies or passions — whether that’s gaming, art, books, or special interests. Autistic children can connect with peers who share their enthusiasm, which makes it easier to build rapport and feel understood. 4. Reduced social anxiety Without the sensory overload of a busy classroom or the unpredictability of group play, children often feel safer and calmer when communicating online. This lowers barriers to participation and self-expression. 5. Control and safety Online spaces allow children to step back, log off, or mute when they need to. This sense of control is empowering, especially if day-to-day life feels unpredictable. Why these friendships matter: Online friendships are real friendships. They provide companionship, support, and belonging. For autistic children, they can be a lifeline — a way to practise social skills, build confidence, and feel less isolated. Of course, safety is essential, and children need guidance to stay secure online. But with the right boundaries in place, online spaces can open doors to connection that may feel closed in the offline world. On this National Internet Day, let’s celebrate the internet not just as a tool, but as a bridge — one that helps many children find friendship, community, and understanding in ways that work best for them.

When the talking stops at home too!

When a child who previously spoke at home suddenly stops talking, even though they can still communicate in brief written messages, it often signals high levels of stress, anxiety, or burnout. A sudden or gradual loss of speech at home suggests something has shifted. Children don’t choose silence lightly; it usually reflects that speaking has become too effortful or overwhelming. Speaking requires social and cognitive energy. If a child is burnt out, anxious, or overloaded, stopping speech can be a protective mechanism — a way of conserving energy and avoiding further stress. Selective mutism vs situational shutdown – If she can still text, that shows her thoughts and language are intact, but the mode of communication has shifted. This is sometimes seen in autistic burnout, selective mutism, or after a prolonged period of masking. Home is usually a “safe” space. If she can’t use speech even there, it may be a sign that her emotional reserves are severely depleted. That could spiral into withdrawal, low mood, or avoidance of school demands. If her energy is being used up coping with school, she may have nothing left for home. Loss of speech at home often precedes or accompanies emotionally based school avoidance, because it signals that her system is overwhelmed. “Burnout” signs – Exhaustion, reduced tolerance of demands, communication shutdown, withdrawal, or appearing “flat” are all red flags that her nervous system is overloaded.
The key message: this is not “just refusing to talk” — it’s a sign of communication shutdown linked to stress or burnout. Supporting her early (by reducing demands, validating her feelings, giving her choice of communication methods, and working with school to lower pressure) can help prevent escalation to full school refusal.

Tuesday, 30 September 2025

When the Standard Route Doesn’t Fit: Advocating for Your Child’s Needs

Parents are often encouraged to “work with the school” or to “trust the process” when challenges arise in education. While collaboration is important, there are times when following the standard route does not meet a child’s individual needs. Professionals naturally rely on established pathways and familiar strategies. These approaches are designed to support the majority of children, and in many cases they are effective. However, children with additional needs do not always fit within those standard models. When a child’s presentation is complex, trying to apply generic solutions can inadvertently cause harm. A good friend of mine, Sylvia made a useful analogy, she said, imagine a child who requires a kidney operation being offered an alternative procedure simply because it is easier or more familiar for the hospital to provide. We would never agree to that, knowing it would not address the child’s medical needs and could cause harm. Similarly, placing a child in an educational environment that cannot meet their needs may compromise their mental health and wellbeing. The law is clear that every child is entitled to a suitable, full-time education that meets their individual needs. When this is not happening, it is reasonable and necessary for parents to question the system and advocate for alternative provision. This is not about resisting support or being “difficult”; it is about safeguarding the child’s right to an education that is both appropriate and sustainable. Parents are the experts in their own children. You hold unique knowledge of their strengths, challenges, and the impact that environments have on them. Professionals bring valuable skills and experience, but they may sometimes try to apply standard approaches that simply do not fit. In those moments, it is essential to remember: • It is not the child’s role to be reshaped to fit the system. • It is the system’s responsibility to adapt around the child. By keeping the child’s best interests at the centre, parents and professionals together can move away from “square peg in a round hole” solutions and towards tailored, lawful, and truly supportive education.

Friday, 26 September 2025

Why Dyslexia Assessors Need to Understand Spoken Language – Especially Developmental Language Disorder (DLD)

When most people think of dyslexia, they think of difficulties with reading, spelling, and written expression. But underneath these challenges often lies a deeper issue: how a child understands and uses spoken language. That’s why it is vital for professionals carrying out dyslexia assessments to have a solid grounding in spoken language development, particularly in recognising *Developmental Language Disorder (DLD). The latest framework for identifying and diagnosing dyslexia places greater emphasis on oral language skills. This shift reflects decades of research showing that literacy difficulties do not exist in isolation. Reading and writing are built on a foundation of spoken language: vocabulary, grammar, sentence structure, and narrative skills. If those foundations are shaky, literacy learning is likely to be difficult – even when phonics teaching has been strong. Spoken language and literacy are tightly interwoven: * Phonological awareness – the ability to recognise and manipulate the sounds of words – depends on robust speech and listening skills. * Vocabulary knowledge supports reading comprehension. Without enough words, children can decode text but not understand it. * Syntax and grammar underpin sentence-level understanding and writing. * Narrative skills help children follow stories, summarise information, and structure their own written work. Without exploring spoken language, an assessor might only see the “tip of the iceberg” – the reading and spelling struggles – while missing the broader communication profile. Developmental Language Disorder (DLD) affects around 1 in 14 children. It is a lifelong condition characterised by significant difficulties with understanding and/or using spoken language, not explained by another condition such as hearing loss or intellectual disability. Children with DLD may: * Struggle to learn and retain new vocabulary. * Find complex sentences difficult to understand. * Produce shorter, less grammatical spoken sentences. * Experience word-finding difficulties. * Struggle with storytelling, sequencing, and organising information. These same children are at heightened risk of literacy difficultie, including dyslexia-like profiles. But crucially, the underlying reason is not only phonological. It’s also about language processing. For a dyslexia assessor, recognising the signs of DLD is essential for several reasons: 1. Accurate diagnosis – Distinguishing between a primarily phonological dyslexia profile and a broader language disorder avoids mislabelling. 2. Appropriate recommendations – A child with DLD will need more than just phonics interventions; they may also require speech and language therapy, vocabulary enrichment, and curriculum support. 3. Fair access to support – Identifying DLD ensures children receive the right adjustments in school, EHCPs, and exams. 4. Joined-up working – Assessors who understand spoken language can communicate more effectively with speech and language therapists and educational psychologists. Recognising the interplay between dyslexia and spoken language isn’t just about more accurate assessments. It’s about equity. Many children with DLD have been overlooked in the past, dismissed as “slow to pick up reading” or “not trying hard enough.” By embedding spoken language into dyslexia assessment frameworks, professionals can open the door to earlier identification, targeted support, and better outcomes. Dyslexia assessors who understand spoken language – especially DLD – see the whole child. They move beyond surface-level literacy difficulties to uncover the deeper language needs that drive them. The new framework acknowledges this reality, and children will benefit. Come to see Rebecca at Small Talk, she is a level 7 Dyslexia assessor who understands DLD.
Why Connection Matters More Than Compliance for Neurodivergent Children in School For many neurodivergent children, school can bring both opportunities and challenges. Too often, classrooms focus on compliance—sitting still, following instructions, fitting into a narrow mould—rather than connection. Yet, connection is what truly helps children feel safe, learn, and thrive. Compliance: The Traditional Focus Rules and routines help schools run smoothly. But when the emphasis is on compliance alone, neurodivergent children can be pressured to: Sit quietly, even if movement helps them regulate. Make eye contact, even if it feels uncomfortable. Produce work on demand, even if anxiety blocks their words. This can lead to masking, burnout, and a deep sense of being “wrong” for who they are. Connection: The Human Foundation Connection means seeing and valuing a child as they are. It creates trust, safety, and respect—the conditions every child needs before they can learn. When children feel connected, they are calmer, more open to challenge, and more able to see school as a supportive place. Why Connection Works Better Safety before learning – The brain learns best when it feels safe. Trust builds resilience – Knowing an adult is on their side helps a child bounce back. Respect fuels motivation – Being valued encourages children to engage authentically. Authenticity lasts longer – Connection fosters lasting growth, not short-term compliance. Small Shifts That Make a Big Difference Listen before directing. Adapt environments to meet sensory and communication needs. Invest in relationships, not just routines. Celebrate differences as strengths. Compliance may bring short-term order, but connection builds lifelong confidence and learning. When schools put connection first, neurodivergent children don’t just cope—they truly thrive. Because education should be about nurturing human beings, not just producing compliant students.We MUST mobe on from an out-dated victorian-based system which just tries to prepare for the work force!